by Claudia Maniatis | Apr 25, 2019 | Uncategorized
Friends and Family far and wide – your prayers and loving energy are whipping up some mighty miracles for our mighty warrior and we wanted to let you all know Will’s marrow biopsy results have made him eligible for BMT!!! We’ve been sitting on this...
by Claudia Maniatis | Apr 19, 2019 | Uncategorized
Sometimes there are no adequate words to post an update that authentically sums up Will’s journey. There is just churning emotion ranging from panic to hope to fear to gratitude. Tonight that is certainly the case…. I’m with my son, we are quietly spending...
by Claudia Maniatis | Apr 8, 2019 | Uncategorized
Courage doesn’t always roar. Sometimes courage is that little voice at the end of the day that says, I’ll try again tomorrow….. Stuva said it best the other day….”Will is the bravest person I’ve met, even in ALL the stories...
by Claudia Maniatis | Apr 3, 2019 | Uncategorized
Cancer creates a path of least resistance because it comes from seemingly nowhere, knocks us down and then bets we won’t get up. The getting up is hard, it might take a few tries but we rise, albeit on unsteady feet, and we turn to face our adversary. The...
by Claudia Maniatis | Mar 26, 2019 | Uncategorized
Thank you all for sending us so much love these past days, weeks and months and I wish I could respond to all the positivity we’ve received in kind but, sadly, I can not. I will keep this update brief. The results of Will’s biopsy were not what we had...
by Claudia Maniatis | Mar 24, 2019 | Uncategorized
I am cocooned at Children’s with my boy on this rainy evening – we are enjoying the more mellow pace of a Sunday night here and soaking up the moments of calm before tomorrow arrives. We look to Monday with both excitement and a little trepidation as Will...
by Claudia Maniatis | Mar 17, 2019 | Uncategorized
I bet you all didn’t know that Will has a little Irish in him – and I think today was the perfect day to cash in on that luck and we most certainly did! Will was eager to bust out of PICU but got derailed yesterday evening and spent an extra night there...
by Claudia Maniatis | Mar 16, 2019 | Uncategorized
Trips to the PICU are earned pretty easily by kids being treated for cancer but until tonight Will had avoided any dramatic changes of scenery and stayed put on the 7th Floor. These past few days, however, have been challenging for Mr. Will – he’s been...
by Claudia Maniatis | Mar 1, 2019 | Uncategorized
It’s darkest before the dawn and I’ve always believed this to be true. Historically my dark and my dawn have been of relative non-emergent qualities but I’ve adopted this mantra most recently to calm me and carry me, renewed, into the next phase of...
by Claudia Maniatis | Feb 3, 2019 | Uncategorized
On December 18th Will and I took our first drive to Children’s Hospital, directed to do so by his pediatrician after getting results from blood work ordered the day prior. I had to map it; really didn’t even know where is was aside from a vague...
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