by Claudia Maniatis | Dec 8, 2019 | Uncategorized
I really want to have something clever to say at this point, but I don’t. This week has been tough and we are putting the finishing touches on an unexpected check-in at Children’s that underscores the reality in which we now exist. Whereas I once was...
by Claudia Maniatis | Nov 8, 2019 | Uncategorized
Happy Friday to you all – hope you’ve all survived the first week of “Fall Back” which tends to throw me off for at least a week…by 4:30p I’m reaching for a wine glass but then glancing at the clock and thinking I better wait a tad...
by Claudia Maniatis | Nov 3, 2019 | Uncategorized
After a grueling week of pain and nausea followed by more pain and nausea, Will has decided it’s just as easy to have pain and nausea at home as it is to have it in the hospital. In truth, Sponge Bob Square Pants and a Halloween party were the real motivators...
by Claudia Maniatis | Oct 30, 2019 | Uncategorized
Still here, not surprisingly, but feeling cozy and well taken care of in our home away from home. Apparently winter decided to make an early and emphatic debut and for added measure is going to stick around for one more day. The view is reminiscent of the many...
by Claudia Maniatis | Oct 24, 2019 | Uncategorized
The weather is fitting – an early snow starting to blanket the area signaling the change that is coming soon – and as I sit and write and watch the fat flakes accumulate, softening the edges of the day and dampening the sounds of the outside world I feel...
by Claudia Maniatis | Jun 7, 2019 | Uncategorized
Just a simple post to update our people on the latest with our boy, Will-I-Am, and his sidekick, Stokeley. Now home we’ve been told to take it slow and so embraced the pace in our clumsy and slap happy ways. The step back into reality has been somewhat awkward...
by Claudia Maniatis | Jun 1, 2019 | Uncategorized
Time has a funny way of being somewhat flexible and malleable in that some days seem to go faster than others. Days turn into weeks which turn into months and often we find ourselves scratching our heads wondering where did the time go? These past months have been...
by Claudia Maniatis | May 20, 2019 | Uncategorized
We are accustomed to live our lives either moving toward a goal or an event or reflecting on moments in the past and this is certainly true even for our family as we live, somewhat suspended, in the midst of Will’s diagnosis of AML. Many of my days are hazy,...
by Claudia Maniatis | May 2, 2019 | Uncategorized
Friends: Will’s results from the MRI were acceptable so the bone marrow transplant is scheduled to go forward tomorrow as scheduled. We would like to cover Will and Stathi in prayer tomorrow morning. Anyone who wants to come is invited to a prayer vigil at Natalie...
by Claudia Maniatis | Apr 29, 2019 | Uncategorized
The vibe rumbling around room 761 on day “negative four” feels about as dreary as the day looks. In a course that has been filled with a few ups and too many downs we have managed to stay hopeful and move through each day with as much grace and gratitude...
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