by Claudia Maniatis | Mar 26, 2019 | Uncategorized
Thank you all for sending us so much love these past days, weeks and months and I wish I could respond to all the positivity we’ve received in kind but, sadly, I can not. I will keep this update brief. The results of Will’s biopsy were not what we had...
by Claudia Maniatis | Mar 24, 2019 | Uncategorized
I am cocooned at Children’s with my boy on this rainy evening – we are enjoying the more mellow pace of a Sunday night here and soaking up the moments of calm before tomorrow arrives. We look to Monday with both excitement and a little trepidation as Will...
by Claudia Maniatis | Mar 17, 2019 | Uncategorized
I bet you all didn’t know that Will has a little Irish in him – and I think today was the perfect day to cash in on that luck and we most certainly did! Will was eager to bust out of PICU but got derailed yesterday evening and spent an extra night there...
by Claudia Maniatis | Mar 16, 2019 | Uncategorized
Trips to the PICU are earned pretty easily by kids being treated for cancer but until tonight Will had avoided any dramatic changes of scenery and stayed put on the 7th Floor. These past few days, however, have been challenging for Mr. Will – he’s been...
by Claudia Maniatis | Mar 1, 2019 | Uncategorized
It’s darkest before the dawn and I’ve always believed this to be true. Historically my dark and my dawn have been of relative non-emergent qualities but I’ve adopted this mantra most recently to calm me and carry me, renewed, into the next phase of...
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